Newborn Screening Care Coordination Grants

 
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    CFDA#

    None     		 

    Funder Type

    State Government

    IT Classification

    C - Funds little to no technology

    Authority

    Indiana Department of Health

    Summary

    The Indiana Department of Health (IDOH) Genomics and Newborn Screening (GNBS) program under the Maternal and Child Health (MCH) Division is accepting applications for Newborn Screening (NBS) Care Coordination grants. In addition, applicants that are applying for care coordination of inborn errors of metabolism may also apply for funds to cover metabolic formula as the payer of last resort. The purpose of this opportunity is to provide newborns with abnormal or presumptive positive screening results with care coordination services to ensure a referral is made for confirmatory testing and treatment. This funding is not intended as a supplemental coverage for medical care. The GNBS program strives to promote, protect, and improve the health of identified Hoosier newborns with genetic conditions and birth defects. Through collaboration with genetic providers and specialty clinics, GNBS envisions a state that values and acknowledges genetics in healthcare by offering Hoosier families, children, and newborns equitable resources and opportunities to reach their health potential. The applicant organization is responsible for complying with instructions included in section V of this Request for Applications (RFA). 


    The purpose of this opportunity is to provide financial support and collaboration among genetic clinics and specialty centers serving pediatric patients for timely care coordination of newborns with presumptive positive or abnormal newborn screen results. 

     

    History of Funding

    None is available.

    Additional Information

    The overall vision of the Newborn Screening Care Coordination program is to provide

    every Hoosier newborn with an abnormal or presumptive positive newborn screen result

    with timely care coordination to ensure optimal health outcomes. This vision is

    accomplished through the following goals and objectives:

    1. Provide early communication with primary care provider to establish a process for confirmatory testing.
    2. Collaborate with primary care provider to discuss confirmatory testing results and develop care plan.
    3. Report patient data for the following events to the health department and the newborn screening laboratory within 5 business days: confirmed diagnosis, diagnosis ruled out, lost to follow-up, and other outcomes. This information must be reported on Patient Status Forms provided by the health department. Information will assist with continuous quality improvement. Successful applicants will:
    • Have an established genetic clinic, specialty clinic, or other healthcare facility that can provide care coordination for newborns with abnormal/presumptive positive newborn screen results.
    • Have adequate staff capacity that can take on the workload of newborn screening patients in identified population. Designate one staff member as the primary contact for required patient reporting and communication with GNBS.
    • Ensure a direct connection or collaboration with appropriate specialists for each specified condition to ensure successful care coordination.
    • Establish and maintain a collaborative relationship with all awardees, the GNBS program, and the NBS lab. 

    Contacts

    Allison Forkner

    Allison Forkner

    ,
    (317) 233-7848
     

  • Eligibility Details

    Eligible applicants include established genetic clinics, specialty clinics, or other healthcare facility in Indiana.

    Deadline Details

    Applications are to be submitted by February 19, 2021 @ 11:59pm ET. A similar deadline is anticipated annually.


    Award Details

    Applicant budget cannot exceed $900,000 per year (Max budget request would include care coordination for all newborn screening conditions and metabolic formula funding). Multiple across Indiana to ensure statewide reach and all NBS conditions are referred. Varied based on population served, prevalence of NBS condition(s), and metabolic formula required. No cost sharing, Project period is from 7/1/2021 – 6/30/2023.

    Related Webcasts Use the links below to view the recorded playback of these webcasts



 

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